This practical course has been designed for clinicians, researchers, registry coordinators and other healthcare professionals planning to or currently collecting PROMs, and will be based on a conceptual framework model and guidelines for the use of PROMs in clinical registries.

 

This introductory one-day course will give an overview of topics ranging from methodological development through to dissemination of PROMs data, including:

• What is a PROM and why use them?
• A look at the different types of information we can get from a PROM
• Instruments used to collect PROMs
• Disease and treatment specific PROMs vs generic instruments
• Development and validation of PROMs
• Item banks and their use in clinical registries
• Ethics and consent for PROMs collection
• Interpreting and presenting PROM data in a registry setting

 

The workshop is aimed at a non-technical audience and is suitable for people without previous experience in PROMs.